Dawn Doran

So today’s visit was a bit unusual. It took for-ev-er, which is not all that unusual. Probably.

Chloe’s BP/heart rate numbers were “striking” in the words of Dr. Abdallah. He described her as “Oh, VERY severe POTS” I could not get her results from them today before leaving, but she had at least a 50 point jump.   So… She has a Holter monitor on to keep track of what her heart is actually doing in a 24 hour period and also we’ll be headed back on Friday morning for something called a tilt-table test.  He said that for her, he would not even think of treatment before doing that test.

I hope that it really works out to be so, but the feeling upon meeting him is of finally being in the presence of someone who is taking a personal interest in Chloe and knows what to do.  He is kind, and so very compassionate.   So, we’ll see what Friday shows.  We will have an appointment with him following the test and get a treatment plan at that time.  Apparently “normal” POTS protocols don’t apply to her already because of her rates,  She is “just different” he said…  ( I just wanted to do the Mr. Fox wavy hand gesture).  Well, we KNEW she was different.   More to the story on Friday.

Home-school begins bright and early tomorrow–  Poor Lil will be home for another day — fever and stomach bug.

Tags: Dr Abdallah, POTS, tilt table test

This entry was posted on Tuesday, January 11th, 2011 at 4:41 am and is filed under Miscellaneous, POTS. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.